Frankie

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Let’s be Frank… is about our boy Frankie, who is three years old. He has Angelman Syndrome (AS). He also acquired a brain injury in June last year after a prolonged seizure. We think he’s awesome.

This blog is about helping the people around us to understand him, and about helping to build his community.

We also want Let’s be Frank to raise awareness around Angelman Syndrome, and to fundraise for Frankie and AS research.

THE NIGHT OF MUSIC FOR FRANKIE SURE WAS GREAT!!
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THANK YOU!