Let’s be Frank…is about our boy Frankie, who is almost 3 years old. He has Angelman Syndrome. He also acquired a brain injury in June last year after a prolonged seizure. We think he’s awesome.

This blog is about helping the people around us to understand him, and about helping to build his community.

We also want to raise awareness around Angelman Syndrome, and fundraise for Frankie’s future.

Bring on Frankfest!